FamilyFX: The Family Reset System
NHS commissioning and referral evidence

NHS Greater Manchester Integrated Care Board

Bolton, Bury, Manchester, Oldham, Rochdale, Salford, Stockport, Tameside, Trafford and Wigan

FamilyFX evidence snapshotMarch 2026 · checked 14 August 2026

Autism referral data for NHS Greater Manchester

Greater Manchester publishes more detail than many systems about its 2026 autism and ADHD pathway changes. Its current page says non-urgent bookings are being scheduled more gradually and clinical need affects priority, while existing referrals keep their original referral date. That live position matters alongside the March data snapshot below.

Recorded referrals

16,115

Open suspected-autism referrals

People whose suspected-autism referral was recorded as open at some point in March 2026.

A count shows scale, not comparative performance.

Share of referrals

92.4%

Open for at least 13 weeks

The share of recorded open suspected-autism referrals that had been open for 13 weeks or longer.

England: 89.7%. 2.7 percentage points higher than the England figure.

Share of referrals

2.5%

First contact within 13 weeks

Among referrals open for at least 13 weeks, the share with a first attended care contact recorded within 13 weeks of referral.

England: 3.7%. 1.2 percentage points lower than the England figure.

Share of referrals

90.8%

No first care contact recorded

Among referrals open for at least 13 weeks, the share without a first care contact recorded in the dataset.

England: 82.7%. 8.1 percentage points higher than the England figure.

What these figures mean

A system signal, not a waiting-time promise

The NHS England measures follow suspected-autism referrals from the referral date to the first attended care contact recorded in the Mental Health Services Dataset. FamilyFX preserves the published counts, shows the numerator and denominator behind each derived percentage, and compares only measures with the same definition and reporting month.

The values come from the published March 2026 NHS Greater Manchester ICB row. Published counts are rounded, so derived percentages are approximate.

Important limitation

This dataset is incomplete by design

These are official statistics in development, not a complete autism waiting list. Most child autism assessments take place in community paediatric services whose activity cannot yet be identified in the Community Services Dataset. March 2026 data from Psychiatry UK was incomplete, and a missing care-contact date can mean a contact was not submitted, the person was still waiting, or the referral closed without a first appointment. The figures should not be used to rate an ICB or predict an individual wait.

Show the calculation behind each figure
MeasureNumeratorDenominatorNHS codesCalculation note
Open suspected-autism referrals16,115Not applicableASD16The values come from the published March 2026 NHS Greater Manchester ICB row.
Open for at least 13 weeks14,88516,115ASD16 + ASD16aThe values come from the published March 2026 NHS Greater Manchester ICB row. FamilyFX divided ASD16a by ASD16 and rounded the result to one decimal place.
First contact within 13 weeks37514,885ASD16a + ASD18The values come from the published March 2026 NHS Greater Manchester ICB row. FamilyFX divided ASD18 by ASD16a and rounded the result to one decimal place.
No first care contact recorded13,51014,885ASD16a + ASD18bThe values come from the published March 2026 NHS Greater Manchester ICB row. FamilyFX divided ASD18b by ASD16a and rounded the result to one decimal place. A missing contact is not the same as a confirmed wait.
Current published evidence

What has changed, and what it means for families

pathwayChildren, young people and adults

Assessment arrangements changed from April 2026

NHS Greater Manchester says new non-urgent ADHD and autism bookings with Right to Choose providers are being scheduled more gradually. It says referrals remain on the waiting list and keep their original referral date, with clinical need affecting priority.

Why this matters: For an individual update, contact the provider holding the referral. If needs become more urgent, ask that provider to review the current clinical information.

Read the source from NHS Greater Manchester

ADHD and autism assessment · published 1 April 2026 · checked 14 August 2026

foiChildren, young people and adults

The ICB has published what it held about demand and capacity

In FOI 2026/1712, NHS Greater Manchester pointed to its public assessment pages and said its medium-term planning framework did not explicitly identify ADHD or autism assessment waiting times as a separate planning requirement at that stage.

Why this matters: The disclosure adds transparency about the documents held, but it is not a current personal waiting-time tool. The pathway page and referral provider remain the useful next stops.

Read the source from NHS Greater Manchester

ADHD and autism demand, capacity and patient choice · published 11 May 2026 · checked 14 August 2026

Data source: Autism Statistics, April 2025 to March 2026, published 14 May 2026 by NHS England Digital.

Refresh: On each NHS England publication. Next source check: 14 September 2026. FamilyFX will retain previous periods so changes can be audited rather than silently replacing the historical record.

ADHD management informationMarch 2026 · checked 14 August 2026

ADHD referral data for NHS Greater Manchester

NHS England now publishes ICB-level management information about referrals that may relate to ADHD assessment. These figures add useful scale and waiting-band context, but they are not a confirmed ADHD waiting list.

Read this first

These are referrals that may be for an ADHD assessment. They are not confirmed diagnoses and should not be read as an exact local ADHD waiting list.

Open referrals

At least 32,775

Possible ADHD referrals still open

Open mental-health referrals recorded under neurodevelopmental conditions excluding autism, including referrals that have already had a first contact.

Open referrals

At least 29,225

Open for more than 13 weeks

Possible ADHD referrals recorded in the three published bands above 13 weeks. This describes referral age, not a promised assessment date.

Open referrals

At least 19,625

Open for more than 52 weeks

Possible ADHD referrals recorded in the 52-to-104-week and 104-weeks-or-more bands.

Open referrals

At least 22,405

No first contact recorded

Open possible-ADHD referrals without a first care contact in the submitted Mental Health Services Dataset record.

Monthly referrals

At least 1,515

New possible referrals in March

Possible ADHD referrals newly recorded during March 2026. It is a monthly flow measure rather than a waiting-list total.

Age breakdown

Possible open referrals by recorded age

Each bar uses ADHD003 for the same reporting month. Bar lengths compare age groups within this displayed footprint only.

0 to 430

People aged 0 to 4

5 to 178,570

People aged 5 to 17

18 to 245,920

People aged 18 to 24

25+18,255

People aged 25+

UnknownAt least 0

Age not recorded in the source row

How the figures were built

A traceable system signal

Measures ADHD003 to ADHD007 come from the Mental Health Services Dataset. NHS England identifies referrals whose primary reason is recorded as neurodevelopmental conditions excluding autism, then publishes their status and time bands by age. FamilyFX keeps the official definitions, source codes and reporting month visible and does not combine the figures into a score or rank.

FamilyFX added the published March 2026 age-band values for predecessor ICB code QOP. Values are rounded to the nearest five, and asterisks marking small suppressed cells are retained as lower bounds.

Important limitation

The publication is still developing

The referral category can include conditions other than ADHD, while some ADHD pathways, Right to Choose providers and independent providers do not submit complete data. An open referral may also remain open after assessment because medication reviews or continuing care are still managed by the provider. The figures therefore cannot give an exact ADHD waiting list, a diagnosis count or an individual waiting-time estimate.

Show the NHS measures behind these figures
MeasureDisplayed valueNHS codesCalculation note
Possible ADHD referrals still openAt least 32,775ADHD003This is a lower-bound subtotal. Small source cells may be suppressed, or a 2026 boundary change may prevent part of the current footprint being separated from a predecessor ICB row.
Open for more than 13 weeksAt least 29,225ADHD003b + ADHD003c + ADHD003dThis is a lower-bound subtotal. Small source cells may be suppressed, or a 2026 boundary change may prevent part of the current footprint being separated from a predecessor ICB row.
Open for more than 52 weeksAt least 19,625ADHD003c + ADHD003dThis is a lower-bound subtotal. Small source cells may be suppressed, or a 2026 boundary change may prevent part of the current footprint being separated from a predecessor ICB row.
No first contact recordedAt least 22,405ADHD004This is a lower-bound subtotal. Small source cells may be suppressed, or a 2026 boundary change may prevent part of the current footprint being separated from a predecessor ICB row.
New possible referrals in MarchAt least 1,515ADHD007This is a lower-bound subtotal. Small source cells may be suppressed, or a 2026 boundary change may prevent part of the current footprint being separated from a predecessor ICB row.

Data source: ADHD Management Information, May 2026, published 28 May 2026 by NHS England Digital.

Refresh: quarterly. Next scheduled source check: 27 August 2026. Previous periods will be retained so revisions and reporting changes remain visible.

Continue with local support

ICB information describes the wider NHS system. Council SEND routes, Local Offers and impartial advice are organised through the relevant local area.

View all 36 ICB evidence pages